Research

While care for children and teens in Pediatric Intensive Care Units (PICU) across the US is high quality and safe, there are many things we still need to learn about how the PICU experience affects patients and families. We believe that children and families deserve the best care and support during this difficult time. The more we learn about how the PICU experience affects patients and families, the better care we can provide for very ill children.

RESTORE

The purpose of this study was to evaluate the use of medications to keep your child comfortable during mechanical ventilation and to follow-up with you and your child after hospital discharge. This trial is now complete and we hope to share the study results soon. 

RESTORE Clinical Trial
Coordinating Center: University of Pennsylvania, School of Nursing
Data Coordinating Center: The Children's Hospital, Boston, MA

RESTORE-​Cognition

This study will interview PICU patients up to five years after they were on a mechanical ventilator (breathing machine) in the hospital. The goal is to see how being in the ICU affects the way children think, feel, and learn a few years after being in the hospital. We are working hard on this study, and will share our results when we finish.

RESTORE-Cognition
Coordinating Center: University of Pennsylvania, School of Nursing
Data Coordinating Center: The Children's Hospital, Boston, MA
Award and Payment Coordinating Center: Seattle Children's Research Institute Center for Child Health, Behavior and Development

For More Information About RESTORE or RESTORE-Cognition

Clinicaltrials.gov provides patients, family members, and members of the public easy and free access to information on clinical studies for a wide range of diseases and conditions. The RESTORE trial is registered with clinicaltrials.gov under the number NCT00814099. 
RESTORE-Cognition is registered under the number NCT02225041.

For More Information About Research in Children

Children & Clinical Studies - National Institutes of Health
Parent's Guide to Medical Research - Children's Hospital Boston 
Sophie’s Science Project: What is Medical Research
​This comic book was developed with the goal of educating children about medical research. Please feel free to download this comic book and share it with children.

Stay in Touch

Thank you for participating in the RESTORE study! Interested in participating in our follow up study? Let us know. Your child’s participation will help other children who will need intensive care for many years to come. Have your address, phone number, or email address changed since you last participated in the RESTORE study? 

Send us your current contact information at: afterpicu@gmail.com